Psoriasis Club Newsletter
August 2019
Welcome to your August newsletter I hope you will enjoy the new format, we decided it was a way forward that would be the same as our new homepage, we would welcome any comments and suggestions
Please log in and have a look at what's new ...there are links here to members photos, poetry, music and lots more. The forum team have been busy keeping an eye on the Club and are there for you, so if you can't find something you are looking for or if you aren't sure how to do something, we are here to help just click the link below to make contact
I'm always looking for ideas to improve the newsletter if you have a suggestion contact me or if you prefer any of the staff HERE
If you are currently a subscriber to the newsletter you will receive notification with a link at the beginning of each month. If you don't currently recieve one and would like to receive an email when a new newsletter is made click HERE
Note: Subscribed members get an early view of the newsletter.
This months stats
11 New Members | 45 New Threads | 2646 New Posts
This months new members
SOHOTROPIC - Bkl366 - DoyleTee - Tahliawharry - Sunnyman - Fasteddie155 - Petersrole - Shay_lacey - CDC1102 - Rayjanie - mynoduesp
Pictures of psoriasis
We are compiling a thread with pictures of different types of psoriasis
You may already know that we have this thread "Types Of Psoriasis Explained" and I have included some dead links that people can copy and paste to see some images as I thought it could help them. But I just had a thought and wondered if we could have some of our own images from our members to give an example. If you can help and have an image contact Fred with the image. It will be anonymous and no faces shown unless you request it Read more
New Introductions
Please look at these introductions and come and welcome the new members that have taken the trouble to write an introduction.
Cowsaregreat say hello I'm new ....
Hello everyone. I’ve been suffering since getting married in 2005. Started on my scalp and now have it all over (inc the crack of my bottom which can be so painful it brings tears to my eyes). I am that person who reads the ‘claims’ of miracle cures and buy it, only to be left disappointed ....... Read more
Fasteddie155 writes ...
>Hi all and thank you in advance for a great website...... I have been on a lot of different medicines and just started on Skilatence which is the way I found you. I look forward to reading your experiences and look forward to share with like minded people that know what it is like to suffer and survive this illness.
....... Read more
mynoduesp askes, Am I doing it right ....
I’m new here. I’m not sure if I’m doing any of this right. Bare with me! I don’t really have a history with psoriasis and the story of how I got here started yesterday when I was told by an Advanced Nurse Practitioner that the dandruff I have and the weird blotches I thought was ringworm and had been covering in anti-fungal cream are, in fact....... Read more
Members Treatments, Questions and comments
Marco's Skilarence thread
Hi There all !
I'm Marco from Italy , 46 years old.
I'm fighting with psoriasis since 1984....
I have taken Neotigason for many years ( last ten years ) and this year after a blood check i have stopped it definitively.
Triglycerides and high ferritin inside liver. Hepatic Steatosis reversible.
I knew the side effects of Acitretin....
This week on wednesday i have started Skilarence and I will tell you my experience. Read more here
Kat asks about Laser removal for psoriasis
Just curious if anyone has ever heard of this.
I keep seeing an ad for it. It states that it's FDA-approved Psoriasis Laser Treatment. It also says that in clinical trials, most people saw at least 75% improvement and even 95% clearance in just 4 weeks.
It says the psoriasis can come back (well DUH!) but that you can have treatments again. Read more
Kate writes about Cosentyx dosage reduction
Yippee! Finally, after 15 months on Cosentyx, my Derm has suggested that I reduce monthly dosage to 150 mg. my psoriasis is 95% gone! I've had it on both palms and sometimes on soles for about 2 years. Has anyone else been advised to reduce dosage and is outcome positive? Read more
Psoriasis News and other related items
Response to IL17A inhibitors for psoriasis multicentre study
This study aimed to assess whether genetic variants in the protein‐coding region or untranslated regions of the IL17A gene are associated with response to IL17A inhibitors in patients with psoriasis.Read more here
This study looked at the long term risk of malignancy in Korean adult patients with psoriasis
The association between psoriasis and risk of malignancy has not been thoroughly evaluated in a large longitudinal cohort of Asian population.
The objective was to determine the long‐term risk of malignancy in Korean adult patients with psoriasis.
Read more here
methotrexate and strongyloidiasis
This study doesn't mention psoriasis but as it mentions "Corticosteroids were taken in 18/21 patients on low‐dose Methotrexate (MTX)" I thought it may be of interest to some of our members that use it.Read more
NHS Scotland to get better dermatology services
A Glasgow nurse is leading a project across Scotland aimed at improving dermatology services including Greater Glasgow and Clyde.
The project, which aims to develop a range of nursing education and training resources designed to help standardise clinical practice, is part of ‘The Co-operation and Working Together (CAWT) Acute Hospitals Services Project’ and has received funding from the European Union (EU).
Read more
Want more?
A lot of members only threads and journals have been updated, come and see if there are more replies on your thread ... why not log-in and have a quick look around.
Off Topic Board | Members Photo's | The Ask Threads
*There are other members only boards. But as it depends on how many posts you have made and what group you are in I won't add them here. The only way to see them is to make more posts.
Q and A's with a member
Each month we choose one of our members at random to answer 10 questions, this month it was jiml the editor of the newsletter.
Q1: Do you have any pets ?
A1: No pets. I love animals but prefer not to keep them as pets
My children have dogs that I love seeing but would be to tied having one of my own
Q2: What would be your last meal ?
A2: There's simple it would have to be a large portion of chilli with white rice ....washed down with a pint of Aspels cider
Q3: Which is best and why ? Films / Books / Music.
A3: Music for me ...nothing rowdy but relaxing stuff is what I like
Q4: What did you have for breakfast today ?
A4: Today I had Weetabix with cold milk, followed with a slice of toast and marmite
Q5: What one piece of advice would you give your younger self ?
A5: Don't be as cautious as I was, take more risks instead of always taking the safe route
Q6: Do you collect anything ?
A6: Nothing at the moment as I'm getting on in years but I used to collect fossils you will see some if you look at my photo albums
Q7: What did you last laugh at ?
A7: Went to a craft fair and laughed at some of the things for sale like fairy poo, and ghost in a bottle
Q8: Do you believe in aliens ?
A8: I have no reason to disbelieve . .I think we are unlikely to be the only planet that has managed to create lifeforms ...so yes I believe in them .but don't think they walk amongst us yet
Q9: What was your best job ?
A9: Apart from being retired I would say my last job where I ran my own company and enjoyed most of it. As I only answered to myself ....it was tough and hard at times but very enjoyable most of the time
Q10: What would you like to be remembered for ?
A10: Not much really, just for always being fair and caring
Who will it be next month ? Watch this space.
Fred's Music Column
Thank you Kat: In last months quiz I said that the song Jolene by Dolly Parton was about a fan of the artist. However Kat pointed out that technically I was wrong and the song was inspired by a red-headed bank clerk who flirted with her husband Carl Dean at his local bank branch around the time they were newly married. In an interview, she also revealed that Jolene's name and appearance are based on that of a young fan who came on stage for her autograph.
When I was coming up with questions for the quiz I searched the internet, and as we all know you can get led down a path where it becomes difficult to choose. On this occasion I chose Dolly Parton as a question because I try to give different genres of music and what I found fitted in with the quiz. However I'm sure Kat knows more about Country music than I ever will so thank you Kat for clearing that up. And I'm pleased to see that someone does actually read my column each month.
*If anyone has a suggestion for a future quiz please let me know. But for now have a go at this one.
Quiz Time: What do these songs have in common ?
Q1: Whoa Mule by The Black Crowes.Q2: Aerial by Kate Bush.
Q3: Small Hours by John Martyn.
Q4: Lovin' You by Minnie Riperton.
Q5: Moving Further Away by The Horrors.
They all have birdsong in them.
A1: It's recorded outdoors and you can hear the birds singing.
A2: This has clever use of birds especially near the end.
A3: This track features a flock of Canadian geese.
A4: A classic that starts with birdsong.
A5: The seagulls on this track were recorded at Whitechapel High Street London.
A1: It's recorded outdoors and you can hear the birds singing.
A2: This has clever use of birds especially near the end.
A3: This track features a flock of Canadian geese.
A4: A classic that starts with birdsong.
A5: The seagulls on this track were recorded at Whitechapel High Street London.
Members recommendations: Each month I ask our members to come up with a music recommendation on a theme. This month it's "Buildings"
Kat suggested: The House That Built Me by Miranda Lambert
D Foster suggested: Your Pussy's Glued To A Building On Fire by John Frusciante
Raxyl suggested: Our House by Madness
Grizzly Bear suggested: House Of The Rising Sun by The Animals
Caroline suggested: Noar ‘t Cafe by Normaal
Beverley suggested: This Ole House by Shakin Stevens
JohnB suggested: Court of the Crimson King by King Crimson
Mrs Fred suggested: The River by Bruce Springsteen
Turnedlight suggested: Tunnel of Love by Dire Straits
jiml suggested: There's a Guy works down the chip shop swears he's Elvis by Kirsty MacColl
wooleyb suggested: Hoover Factory by Elvis Costello
Fred suggested: House Of The Crosses by Otis Taylor
*Watch out for my new thread each month where I ask for your recommendations. I also have a thread in the Members Only boards and you are welcome to pop along and give some feedback or suggestions. Find It Here
Enjoy your music, and don't forget to tune in next month.
Recipe Spot
Its Recipe time Odd but so nice
OK folks, I promised you something different this month I was somewhat sceptical When Mrs John said we were having this but bear with me it is delicious. Don your sou-wester and head to your favourite fishing hole and extract a couple or three smoked mackerel fillets dependant on size and whip their skins off.
Bring a large pan of salted water to the boil and throw in a couple of healthy servings of your favourite pasta, Conchigli or Orecchiette (thats the shell or little ear) will work well and cook to al-dente as per the packet timings.
Finley chop a couple of shallots and a couple of cloves of garlic and throw into a large hot frying pan with a good shot of olive oil and cook gently until softened. By now the onion will be feeling a little parched so treat it to a good slug of Marsala wine (don’t forget a little nip for the chef as well). Once the wine has reduced, flake the mackerel and gently stir.
a couple of teaspoons of rinsed capers (I prefer salted capers but a good quality caper in vinegar is fine. Don't use cheap capers in vinegar they are bloody awful they only taste of vinegar, no matter how well you rinse them). to the mix throw in a handful of sultanas and a half handful of finely chopped dill. Yep you know the score give it another mix.
By now the pasta should be perfect so scoop the pasta out of its bath and pile into the sauce. Don’t be too fussy draining the pasta, its always a good idea to allow a good splash of the pasta water into the sauce, it allows the sauce to cling to the pasta better amongst other things. Serve with a sprinkling of finely chopped dill and some pine nuts.
Oh this is soooo good.
Not a clue what to serve it with, I think I would probably go for a nicely chilled Gewürztraminer or a lovely cold Peroni.
Right then - who’s turn is it to wash up??.
To read more recipes or add your own Click hereMembers Photos
We have an active members photo section on Psoriasis Club and each month our members can choose 1 image to show on the newsletter. This month the theme is Summer.
* All images are property of the member mentioned below the image.
See more members photos Here
Information
Please remember no posts and no log-in for 12 months, your account will be deleted. For more information about this policy See Here!
Birthdays
These members have a birthday this month showing in their profile. Maybe you would like to send them a PM on their special day. Or you could start a new thread in Off Topic
9 August reham abdullah
30 August Raxyl
Happy Birthday to you.
Psoriasis and hot weather
With the current heatwave I have noticed the little bit of psoriasis I have on my shins is itching a lot more. I notice it the most when I go outside and when I come back inside it seems to calm down. I've never really thought about it before, but this heatwave is definitely making it itch more.
Anyone else noticed a difference to psoriasis in hot weather ?
You are welcome to comment HERE
Top Tips for newly diagnosed
If you have recently been diagnosed with Psoriasis or even if you have suffered for years, members have been posting things they feel may help you cope, you can follow the link below to see more tips that members have posted.
Number 1.....appointment support: Take someone to your Dermatologist appointment. They seem to treat you a little differently and having another person allows two sides of the same point to be made. There is also the benefit of extra recall of the consultation.
Number 2.... Antihastamine Use a supermarket own brand non-drowsey anti histamine to help with the itching. (Always read the instructions before taking)
To see the full list of top tips Or if you have one to share Click Here
Poetry section
Turnedlights poetry corner
Looking out of the window while waiting for a blood test..
That fat pigeon
Edges down
Balancing with his wings
Like a clumsy tightrope walker
He doesn’t have blood tests
Or bills
He wants to get to
The juicy tips
The light green ones
He might drop off his perch
Tomorrow
For good
Lights out.
Nearly there
Fresh and lush
Just within reach
Living in the present
Do pigeons worry?
They don’t look worried..
Author Turnedlight
To read more poems or add your own Click Here
Sunflower competition
Several members sunflowers have flowered, but mine are still pushing upward
There are a few pictures of members plants to be seen by clicking the link below and if you have any pictures or yours have flowered we would be delighted to see them
So add comments and pictures on this thread please Click Here
Thought of the month
IF YOU EVER GET CAUGHT FALLING ASLEEP OVER YOUR DESK IN THE OFFICE
SLOWLY RAISE YOUR HEAD AND SAY
IN THE NAME OF THE FATHER
AMEN
For more thoughts of the day or to add your own Click Here
Hints and tips
Beginners guide to posting an introduction
If you are new to forums this may help you with your first post.
- From main menu click on Introductions
- Above the introductions is a button new thread
- Click on this a box will open
- On the left of the box second line down is Thread Subject write your description in here for instance " jimbos Intro" or whatever you want to name it
- Below that is a big box to click on and write your introduction when you are happy with it and want to see what it looks like
- At the bottom of the box past the green section it gives three options... Post thread ..... Preview post ... Or save as draft.
The first thing to do is click Preview Post ..... You can then see what others will see when posted... If there are changes to be made you can change it before you post it by clicking Post Thread. See here for more
Should you get stuck or need help just ask a member of the forum team who are always pleased to offer assistance Forum Team
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