Welcome to your November newsletter, it's been particularly busy on the forum in the last month with lots of activity in the off topic section, always a good thing to see . Why not pop in and have a chat or maybe update your threads or just come and say hi, you are always welcome .
We are still not getting seen in search engines as much as in the past but we are still attracting new members that are contributing to the club, so I would like to thank those new members for joining the club and helping to keep it active .
Fred has been busy as always promoting us on social media so we are still being found. If you have any ideas for improving or promoting the club do come and tell us via the link below
If you're a guest feel free to browse through the links here and join if you want to see more. The forum team have been busy keeping an eye on the Club and are there for you, so if you can't find something you are looking for or if you aren't sure how to do something, we are here to help just click the link below to make contact
I'm always looking for ideas to improve the newsletter if you have a suggestion contact me or if you prefer any of the staff HERE
If you are currently a subscriber to the newsletter you will receive notification with a link at the beginning of each month. If you don't currently recieve one and would like to receive an email when a new newsletter is made click HERE
Note: Subscribed members get an early view of the newsletter.
We are still compiling the thread with pictures of different types of psoriasis, we have had a limited response to the request so thought we would ask again, for those that missed it
You may already know that we have this thread "Types Of Psoriasis Explained" and I have included some dead links that people can copy and paste to see some images as I thought it could help them. But I just had a thought and wondered if we could have some of our own images from our members to give an example. If you can help and have an image contact Fred with the image. It will be anonymous and no faces shown unless you request it Read more
Please look at these introductions and come and welcome the new members that have taken the trouble to write an introduction.
Hi, I'm John. Been battling with Plaque psoriasis for a few years now. I'm pretty sure got it from taking Rivaroxaban (Xarelto). Had been on Warfarin for 16yrs + and body was no longer having it. Now on Pradaxa and blood is good. Plaque not so good. Derm started me with cream and injections, he loved those injections. Sadly they only briefly help out and help his wallet and hurt mine.
Primary Dr put me on Acitretin and about the same time I went on Keto and have lost 50lbs in a year and 80 lbs total. I did go off the acitretin for a month since I was almost 100% clear was hoping it was the clean diet. But alas it wasn't and went back on the drug. I have almost every side effect they list, and as I was searching the net I see more added that I hadn't put down as the medicine as well. Losing my eyebrows and eyelashes was no big deal. Hair loss also doable, the skin on fire and scratching my face and knees just about unbearable. Would wake up bloody each morning, from scratching. Night blindness and messing with my head I can't bear any longer. Months ago had asked the Dr to change up the med, but she didn't want me to have to start over with all new side effects. I've been on it for over a year and 2 weeks ago took my last dose..... Read more here
Hi hoping to find likeminded people who understand what it like to suffer with psoriasis and the day to day humdrum that’s involved, so to all hope to chat soon . See more here
Mac092 writes his insight on Skilarence
Been almost 2 years since I posted, so apologies for my absence! I've noticed a number of people sharing their experience with Skilarence and I just thought I'd do the same, in case it could help anyone.
I've had guttate psoriasis 8/9 years. Not sure of any of my scores, but my derm considers it severe. I have tried topical treatments with no success as well as light treatment with limited success. Approx 4 years ago I was put on Fumaderm and it was like magic, 100% clear. 2 years ago I did have a mini flare up when my dosage was reduced too low but it corrected itself once I increased my dosage and it stayed steady on 4x120mg a day. . Read more here
Kat's journey with Laser therapy (XTRAC)
Oddly enough, I only recently heard of lazer therapy. I was a bit surprised when my dermatologist offered it as a bit of a "let's see if this works while we regroup" type of thing. So I am now going for appointments twice per week for XTRAC.
So a little history, I was on three biologics, Stelara, Cosentyx and Taltz. I did not notice any big improvements while on them. There were times when it looked a bit better, but then would go back. So this is where I am currently.
I should tell you that behind my ears and inside ears HAS improved! About 3 weeks ago, the doctor took me off Taltz and started the process of getting the Lazer therapy approved. Immediately after that appointment, I started using Taclonex again as I did not want to go backwards. I had told the doctor a few times that the biologics along WITH the Taclonex would show improvement but she stated that I shouldn't need the Taclonex while on the biologic (as in the biologic should work on it's own) So since I didn't want to skew things by using both, I stopped the Taclonex except for very few times when the scalp was REALLY bothering me. I mention all of this as to be honest, I don't know now if finally the Taltz started to work or if it has been these last few weeks using the Taclonex, but my ear is clear and behind it is only slightly raised and red. I am going with the Taclonex or combination of the two....... Read more
KatT writes about Psoriasis and Raynauds
Are you experiencing Raynaud`s disease/phenomenon and if so, what did your doctor recommend or prescribe?
What is Raynaud's
Raynaud's disease causes some areas of your body — such as your fingers and toes — to feel numb and cold in response to cold temperatures or stress. In Raynaud's disease, smaller arteries that supply blood to your skin narrow, limiting blood circulation to affected areas.
Symptoms can include:
Cold fingers or toes
Color changes in your skin in response to cold or stress
Numb, prickly feeling or stinging pain upon warming or stress relief
During an attack of Raynaud's, affected areas of your skin usually first turn white. Then, they often turn blue and feel cold and numb. As you warm and circulation improves, the affected areas may turn red, throb, tingle or swell.
Raynaud's most commonly affects your fingers and toes however, it can also affect other areas of your body, such as your nose, lips, ears and even nipples. After warming, it can take 15 minutes for normal blood flow to return to the area. Read more
Cosentyx could help multiple sclerosis in psoriasis patients
This study suggests Cosentyx (secukinumab) could help multiple sclerosis in patients with psoriasis.
According to the literature, a significant association between multiple sclerosis and psoriasis has been reported. Among the various drugs used to treat psoriasis, tumor necrosis factor (TNF)‐α inhibitors seemed to increase the incidence of demyelinating diseases while IL‐17A inhibitors seemed to reduce the activity of multiple sclerosis.
The aim of this study is to find out if the use of Secukinumab in patients with psoriasis and multiple sclerosis would be both beneficial and safe.
Cosentyx and Liver (study)
This study suggests neutral to favourable long term trends in metabolic and liver parameters under Cosentyx (secukinumab) treatment.
Psoriasis is associated with metabolic, liver and cardiovascular comorbidity. Secukinumab, a fully human monoclonal antibody that selectively neutralizes interleukin‐17A (IL‐17A), has shown significant and sustained efficacy in the treatment of moderate to severe psoriasis.
This was an exploratory post hoc analysis of pooled data from three phase 3 studies in plaque psoriasis patient populations. The objective was to show the course of metabolic and liver parameters under secukinumab, etanercept, or placebo treatment over time. A further objective was to assess the impact of selected comorbidities and metabolic characteristics on high‐sensitivity C‐reactive protein (hs‐CRP), as a surrogate marker of systemic inflammation.
Taltz beats Tremfya in head to head study
Eli Lilly makers of Taltz say they have beaten Tremfya in a head to head study.
Eli Lilly today presented detailed data at the 5th Annual Maui Derm NP+PA Fall meeting from the Phase 4 IXORA-R study, the first head-to-head (H2H) study between an IL-17A inhibitor and an IL-23/p19 inhibitor using the Psoriasis Area Severity Index (PASI) 100 score as the primary endpoint. Taltz met the primary endpoint of superiority vs. TREMFYA in the proportion of patients with moderate to severe plaque psoriasis achieving complete skin clearance as measured by PASI 100 at Week 12, as well as key secondary endpoints. The study is ongoing through Week 24.
"Healthcare providers and patients value speed of response when evaluating treatment options for moderate to severe plaque psoriasis," said lead study investigator Andrew Blauvelt, M.D., M.B.A., dermatologist and president of Oregon Medical Research Center in Portland, OR. "The results from the IXORA-R study demonstrate that Taltz was effective in helping more patients achieve completely clear skin by Week 12, with a 50 percent improvement in skin plaques seen as early as Week 1.".......... Read more of the study here
Rate of Tattoo complications in psoriasis patients low (study)
Tattooing is a widespread phenomenon, with an estimated prevalence of 10–30% in Western populations. For psoriasis patients, current recommendations are to avoid having a tattoo if the disease is active and they are receiving immunosuppressive treatments. Although scientific data supporting these recommendations is lacking, dermatologists are often reluctant to advocate tattooing in psoriasis patients.
We aimed to evaluate the frequency of tattoo complications in patients with psoriasis and determine if the occurrence of complications was associated with psoriasis status and treatments received at the time of tattooing.
We performed a multicentre cross‐sectional study. Adults with psoriasis were consecutively included and classified as tattooed or non‐tattooed. Prevalence of complications associated with tattoos was then evaluated according to psoriasis onset and treatments. The study was divided into three parts, in which data were collected through a series of questionnaires filled in by the dermatologist. Complications included pruritus, oedema, allergic reaction/eczema, infection/superinfection, granuloma, lichenification, photosensitivity, Koebner phenomenon and psoriasis flare after tattooing. Diagnosis of complications was made retrospectively.Read more
Periodontal therapy improves psoriasis
The purpose of this randomized controlled clinical study was to evaluate the effect of non‐surgical mechanical periodontal therapy on the inflammatory status and severity of psoriasis in subjects with psoriasis.
The study population consisted of 92 periodontitis patients with psoriasis vulgaris suffering from an untreated periodontal disease. Two randomized groups were formed from these patients. Immediate periodontal therapy (test group, n = 46) and delayed periodontal therapy (control group, n = 46). Periodontal clinical measures, on salivary interleukin 2, interleukin 6 and secretory immunoglobulin A levels and the Psoriasis Area and Severity Index (PASI) scores were evaluated at baseline and on the 8th week in control and test groups.Read more
Cardiovascular events in patients with psoriasis (cohort study)
The cardiovascular safety profile of biologic therapies used for psoriasis is unclear.
To compare the risk of major cardiovascular events (CVEs; acute coronary syndrome, unstable angina, myocardial infarction and stroke) in patients with chronic plaque psoriasis treated with adalimumab, etanercept or ustekinumab in a large prospective cohort.
Prospective cohort study examining the comparative risk of major CVEs was conducted using the British Association of Dermatologists Biologics and Immunomodulators Register (BADBIR). The main analysis compared adults with chronic plaque psoriasis receiving ustekinumab with tumour necrosis‐α inhibitors (TNFi: etanercept and adalimumab) while the secondary analyses compared ustekinumab, etanercept, or methotrexate against adalimumab. Hazard ratios (HRs) with 95% confidence intervals (CIs) were calculated using overlap weights by propensity score to balance baseline covariates among comparison groups.Read more
A lot of members only threads and journals have been updated, come and see if there are more replies on your thread ... why not log-in and have a quick look around.
*There are other members only boards. But as it depends on how many posts you have made and what group you are in I won't add them here. The only way to see them is to make more posts.
Each month one of our members gets invited to choose from a wide range of questions and give answers to 10 of them. This month it was alan540
Do you have any pets ?
A golden labrador and two cats
What would be your last meal ?
Liver, bacon and onion
How do you relax ?
Swimming and walking
Which is best and why ? Films / Books / Music.
Books because they stimulate one's imagination
What did you have for breakfast today ?
Bacon, eggs, cockles and laverbread
What one piece of advice would you give your younger self ?
Got any bad habits ?
Smoking. It's something that I'm considering knocking on the head before it knocks me on the head.
First thing you would do with 1 million of your own currency ?
Retire somewhere sunny
Do you still buy newspapers / magazines ?
I subscribe to a health magazine. It's been many years since I read a newspaper or kept up to date with current affairs.
What is the best part of the day ?
The bit where my eyes are open. Sleeping is pretty good though.
Ever broken any bones ?
Far too many. Thankfully they have a tendency to repair. Breaking bones could also be on my list of bad habits.
Who will it be next month ? Nominations on a postcard.
The 27 club: This is a new one on me, but I found it interesting so thought I would share. I was researching Brian Jones to settle a friendly argument and noticed he died aged 27, I was sure that age rang a bell so I dug a little deeper and there is a "27 Club"
Members of The 27 Club (musicians / artists who died at age 27) lists a few names I'm a fan of including. Robert Johnson, Brian Jones, Alan "Blind Owl" Wilson, Jimi Hendrix, Janis Joplin and Jim Morrison. I also noticed Kurt Cobain and Amy Winehouse are on the list, I'm not a big fan of their music but do class them as good artists.
Wikipedia lists 73 artists in the 27 club which has no official status and I would think it is all just coincidence ............................ Unless you know different ?
* Oh and I won my argument, Bryan Jones was the original leader of The Rolling Stones.
**Whilst getting my column together I found out there is also a film about the subject, but I've not seen it.
Quiz Time: The quiz is still proving a bit difficult so I'm going to tray another remake to see how it goes. 1 point for each one you get right.
True or False ?Q1: In the film "Yellow Submarine" the spoken parts are not the Beatles
*Watch out for my new thread each month where I ask for your recommendations. I also have a thread in the Members Only boards and you are welcome to pop along and give some feedback or suggestions. Find It Here
Enjoy your music, and don't forget to tune in next month.
Now that the winter nights are drawing in thoughts turn to nice warming comforting stews and the like. We and by we I mean Mrs John found this recipe and it could become a winter staple a nice satisfying Pork Stew.
Autumn Pork Stew
This will / should feed four, but it does freeze well so why not batch cook it, double the quantities freeze it for quick meals after work.
So start off browning around 600g of Pork medallions over a medium heat for a couple of minutes a side in a little oil in a large pan. Remove when ready and put somewhere warm while you cook the rest of the stuff. Throw a finely sliced onion and a couple of sticks of celery that have been finely diced and three good sized cloves of garlic into the pan you have just cooked your pork in and cook for 8 or so minutes until its softened. Chances are the pork will have swallowed up the oil and left a nice flavour crust in the pan and by now your onions and celery will want to start sticking to this mess so just add a splash of water and carry on cooking, but keep it moving. Now you want to add a teaspoon of fennel seeds and a tablespoon of paprika mix it all in to the veg and cook for a further minute before chucking in a tin of butter beans that have been drained and rinsed, bringing it all together with 175ml of chicken stock.
(So has anyone ever struggled to open your stock cube and crumble it into your jug before adding the water? Well struggle no more. Just take your stock cube, and gently massage between your thumb and forefinger for a short wile and lo and behold if you are careful and your cubes haven't been sat festering for an eternity you will now have a nice blister of perfectly crumbled stock to tear open and tip into your jug.)
Give it all a good stir, bring to the boil drop the heat to a nice simmer, return the pork with a couple of sprigs of rosemary and a dozen cherry tomatoes. Cover and simmer for around 10 minutes. Then remove the lid and continue for 5 minutes more until the pork is nice and tender and the sauce has thickened.
And so to serve.
We served ours with some home grown Anya Pink Fir Apple spuds and some plain boiled cabbage (plenty of butter and ground black pepper stirred into the drained cabbage obviously). You might also want a good slab of crusty bread to help mop up the sauce.
To accompany why not try a nice dark Italian beer like Peroni Gran Riserva Rossa – only lightly chilled mind.
Next month something a little different.To read more recipes or add your own Click here
Im always pleased when members submit photos for use in the newsletter and each month our members can choose 1 image to show on the newsletter and I'm always pleased to add them
* All images are property of the member mentioned below the image.
See more members photos Here
Please remember no posts and no log-in for 12 months, your account will be deleted. For more information about this policy See Here!
It can be a big shock when you get diagnosed with psoriasis and it is a life changer. So I thought it would be a good idea to compose a list of tips from those of us that have been living with it for a while and pass on our top tips to the newly diagnosed.
*The following tips are from our members and not listed in any order of importance. We are all just people from all walks of life and have no medical training, but between us we have a vast knowledge about psoriasis, it's treatment and what it's like to live with it.
Get a referral: Don't keep going to a General Practitioner (GP) who can only prescribe creams and ointments, if it's not clearing up ask for a referral to a dermatologist who has a full arsenal of treatments to help.
Read: You have Psoriasis, try to get some knowledge about your disease, it will make you a better partner for your dermatologist in order to find the best treatment for you.
Talk: Don't keep it to yourself. Share with your friends, family, colleagues and our members here.
To see the full list of top tips Or if you have one to share Click Here
Turnedlights poetry corner
The Vegan ..
There was a young vegan called Pete
Who decided no more to eat meat
No eggs and no jelly
No cheese mild or smelly
And no leather shoes for his feet
To read more poems or add your own Click Here
The new coffee shop will be called Huggamug and is now open (after much delay owing to the wrong kind of spoons being delivered)..
come on over and get your free virtual coffee and slice of cake and have a chat in this new facility
For more thoughts of the day or to add your own Click Here
Beginners guide to posting an introduction
Hi I have seen many new members looking through the introductions. If you are one and are new to forums this may help you with your first post.
#1 From main menu click on Introductions
#2 Above the introductions is a button new thread
#3 Click on this a box will open
#4 On the left of the box second line down is Thread Subject write your description in here for instance " jimbos Intro" or whatever you want to name it
#5 Below that is a big box to click on and write your introduction when you are happy with it and want to see what it looks like
#6 At the bottom of the box past the green section it gives three options... Post thread ..... Preview post ... Or save as draft.
The first thing to do is click Preview Post ..... You can then see what others will see when posted... If there are changes to be made you can change it before you post it by clicking Post Thread
That's it its basic but simple if you follow the instructions.
Should you get stuck or need help just ask a member of the forum team who are always pleased to offer assistance Forum Team
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No Recruitment Posts.
No promotions or offers.
Just a small bunch of friendly people with psoriasis sharing information and support.