Welcome to your April newsletter, Sadly we are in the midst of the terrible covid-19 virus which has caused the world to come to a standstill
It's changing the world as we knew it and is putting health services under extreme pressure and causing us as psoriasis sufferers stress at levels not thought possible a few weeks ago ...Do we continue with our treatments or stop until it goes or a vaccine is found
We have a few threads about the virus and even a light hearted look at the virus designed to make us smile click the link to see more Covid-19 aka corona virus and psoriasis .
I hope you will come in and tell us how you are managing during this difficult time
If you have a thread about your experiences what better time to come in and update your thread or if you don't have one and would like to start a thread about your treatment you can do that Here .
The off topic has been as busy as ever as we now have a games and quiz board where many of the existing games have been moved to and a few new ones added why not pop in and have a look Games and Quizzes Here
If you're a guest feel free to browse through the links here and join if you want to see more. Some off topic items may not be available for guests but all the health boards are
The forum team have been busy keeping an eye on the Club and are there for you, so if you can't find something you are looking for or if you aren't sure how to do something, we are here to help just click the link below to make contact
I'm always looking for ideas to improve the newsletter if you have a suggestion contact me or if you prefer any of the staff HERE
If you are currently a subscriber to the newsletter you will receive notification with a link at the beginning of each month. If you don't currently recieve one and would like to receive an email when a new newsletter is made click HERE
Note: Subscribed members get an early view of the newsletter.
Please look at these introductions and come and welcome the new members that have taken the trouble to write an introduction.
Hi..my name is Mary from New York. Have had psoriasis since 1980 but it got better as I got older. 2 months ago I had a horrible flare up and have eczema as well. I’m 68 and can’t believe this! Dr. gave me creams,etc. My hands cleared up with the steroid cream but had to stop for 2 weeks and it is back. Can start again this week. It’s the itch that’s driving me nuts. Any suggestions? ........... Read more here
OneBigItch wrote Skilarence and Corona virus
Hi all, l've had a thought recently about my upcoming meds.
I am due to start Skillarence next month which as you know has an effect on your immune system. Will this make me more susceptible to complications from the coronavirus? more here
Xeljanz and venous thromboembolism
Xeljanz (Tofacitinib) is sometimes precribed to treat psoriatic arthritis.
The UK have issued a drug safety update for it's use:
Tofacitinib: New measures to minimise risk of venous thromboembolism and of serious and fatal infections.
Caution should be used in patients with known risk factors for venous thromboembolism in addition to the underlying disease. Patients older than 65 years of age are at an increased risk of serious infections and should be treated with tofacitinib only if there is no alternative treatment...... Read more here
A lot of members only threads and journals have been updated, come and see if there are more replies on your thread ... why not log-in and have a quick look around.
*There are other members only boards. But as it depends on how many posts you have made and what group you are in I won't add them here. The only way to see them is to make more posts.
Each month we choose one of our members at random to answer 10 questions, this month it was Kat *She decided 11 was better than 10
Q1: Do you have any pets ?
A1: Yes, I have 3 dogs. Riley a Saint Bernard, Rascal a corgi/heeler mix and Roxy a chihuahua/dachshund mix and 2 horses.
Q2: What one piece of advice would you give your younger self ?
A2: To take care of my health better! Getting old can be tough so it's best to be in the best shape you can when you take it on.
Q3: Your biggest achievement was.
A3: Definitely my kids!
Q4: Do you believe in aliens ?
A4: Not really although if they do exist then I've met a few.
Q5: What was you best job ?
A5: Sports/Special Events Coordinator in Alaska
Q6: Do you know the words to your national anthem ?
Q7: What is your favourite saying ?
A7: Don't cry because it's over, smile because it happened. (The legendary Dr. Seuss!)
Q8: What was life like as a child ?
A8: Wonderful! Although I love the convenience of modern technology, I'm glad that I grew up without it. Lots of time playing outside with friends and face to face conversations.
Q9: Ever been in trouble with the law ?
A9: Nope, I've always been a good girl. (or never got caught anyway.......)
Q10: Who do you miss the most ?
A10: My mom
Q11: Do you class yourself as an optimist or pessimist ?
I am pessimistically an optimist.
If you would like to be next please send me a PM
Neal and the Vipers: Here's a band you don't hear much of even though they have been punching out live shows for around 30 years. Neal Vitullo guitarist and Dave Howard vocalist are the original founders of what started as "Young Neal and the Vipers" in the early 1980's and are based in Rhode Island.
They are known for getting their fans up on the floor playing American roots blues, rock & roll, rockabilly, and surf. From covers of Little Wing and Hey Joe (every band has to try those) they also do a good Pipeline as well as a lot of their own stuff too these days.
They have cut a few albums, but only their latest "One Drunken Kiss" is easy to find and is a compilation of several of their original and cover songs. Don't let that put you off though as you will soon find it's one you won't want to put down, the band are tight and the vocals and guitar work very well together. It's one of those albums that will give you a good taste of American roots music and no this isn't just modern Blues, this is like I say a good mix and I bet there is at least one track in there that will prick your ears up.
It's sometimes difficult these days to find non mainstream bands and these guys have been around a long time, but only now are getting found by a wider audience. So get your headphones on, crank it up a little and go and find yourself One Drunken Kiss by Neal & The Vipers. You won't be disappointed.
Quiz Time: 1 point for each one you get right.
*This month KatT has helped again with the quiz and we would like your feedback.
Match the siblings with the band.
#1: LaVerne, Patty, Maxene #1 The Proclaimers
#2: Karen and Richard #2: Ace of base
#3: Charlie and Craig (Reid) #3: Oasis
#4: Vicki and Debbie (Peterson) #4: Split Enz
#5: Liam and Noel #5: The Carpenters
#6: Richard and Tim (Butler) #6: AC/DC
#7: Andrea, Sharon, Caroline, and Jim #7: The Bangles
#8: Linn, Jenny, Ulf, Jona (Berggren) #8: The Coors
#9: Malcom and Angus (Young) #9: The Andrews Sisters
#10: Tim and Neil #10: The Psychedelic Furs
*Watch out for my new thread each month where I ask for your recommendations. I also have a thread in the Members Only boards and you are welcome to pop along and give some feedback or suggestions. Find It Here
Enjoy your music, and don't forget to tune in next month.
I had absolutely no idea what to write about this month, then Mrs John found this little gem and oh boy is it yummie.
Right down to business (Ohhhhhh I’m drooling already at the thought of this dish). Mix together ½ teaspoon of paprika, ½ teaspoon dried oregano, ¼ teaspoon cayenne pepper (or a tad more if you are brave but don’t overdo it), ¼ teaspoon salt and ¼ teaspoon of ground black pepper in a small bowl. Take around 300g of prawns, fresh if you can get them or cooked / thawed out frozen, do work quite nicely. De-vein them and toss in the spice mix and leave to marinade for ten minutes or so.
Roughly chop an onion and fry for three or so minutes over a medium high heat in a glug of olive oil then crush a nice fat clove of garlic into the softening onion. Cook for another minute, then add a couple of roughly chopped peppers, a green and a yellow for preference, it looks prettier and you don't rally want the sweetness of a red pepper. Continue to cook for around another five minutes or so until its all nice and golden and the veggies are tender.
If you are using precooked prawns they can go in now and just cook to heat the prawns up, they will toughen up if you cook them too much and there's nowt worse than chewy prawns.
If you are using fresh prawns then put the cooked veggies in a bowl somewhere warm and cook your prawns for a couple of minute a side. Once cooked to perfection chuck in the veggies and toss the lot together.
And so to serve.
This is most definitely best with rice and the nuttiness of brown rice compliments it perfectly. Sprinkle some chopped flat leaved parsley and a lemon wedge.
Yep. I know.
No Sprinkled Parsley.
You just can't get the staff these days
We have also tried Orzo pasta (don’t ask) and it really, really doesn’t work. I’m not sure that noodles would work either.
And for a beverage? Well I am going to be somewhat controversial here but it works quite nicely a lightly chilled pale cream sherry. Yeah right I know what you thinking but it does work. Its just sherry glasses are so damned small!
Prawns in this instance are small crustaceans of the genus Decapoda are around 30 – 40mm long stretched out and around 10mm across at the thick end. They are what our American cousins incorrectly in my view refer to as shrimps. And by the way I just hate the tails being left on. It just makes life hard work when eating.
For next month I am on the hunt for a good recipe for the toilet roll tubes that will be in abundance.
To read more recipes or add your own Click here
Next month we will be celebrating Psoriasis Club's 10th birthday.
As many of you know if you read the newsletter Fred has a Q and A session with a member each month (see above )
Next month we will be celebrating Psoriasis Club's 10th birthday so thought we could have Q and A's about Psoriasis Club for the May edition.
So If you have any question you would like to know about psoriasis club ( i.e. How is it funded) just ask on the link below and Fred will choose 10 to answer for the next newsletter and the rest will be answered in this thread. Over to you
Im always pleased when members submit photos for use in the newsletter and each month our members can choose 1 image to show on the newsletter and I'm always pleased to add them This months theme is nature
* All images are property of the member mentioned below the image.
See more members photos Here
Please remember no posts and no log-in for 12 months, your account will be deleted. For more information about this policy See Here!
First off I should point out that none of us at Psoriasis Club are medical professionals and you should follow the advice from your own healthcare system, we are just people like you living with psoriasis.
I have spent a lot of time looking for information as it's starting to worry some of our members, and as far I can see there is no reason for anyone taking a treatment for their psoriasis to stop.
Yes we have a recognised immune problem and this can be made worse with some treatments, but as far as I can find the recommendation is to continue with our current treatments.
I will continue to monitor the Covid-19 and Psoriasis news and update this thread if I have anything official to tell you.
You can read more here HERE
Don't let it get you down: You don't look as bad as you think and anybody that does not like it can go and do the other !!
Appointment support: Take someone to your Dermatologist appointment. They seem to treat you a little differently and having another person allows two sides of the same point to be made. There is also the benefit of extra recall of the consultation.
Applying Topicals: Always apply any topical in the direction of how your hair lies (the grain) it helps avoid more irritation to the skin. Also apply at least half an hour after moisturising for the best absorption.
Injections: They are only under the skin and although a bit daunting at first you soon get used to them. Remove from the fridge 20 minuets before use to help stop the slight stinging sensation.
Clothing: Always wear 100% cotton clothes; ie, t-shirts, trousers, underwear etc. Avoid polyester, nylon etc because they will irritate your skin. . .
To see the full list of top tips Or if you have one to share Click Here
Turnedlights poetry corner
..Editors note ....A lovely poem to remind us that nature goes on at this time of global disruption
A bird builds her nest
Where she thinks it is best
And sits down
on her uncertain tenure
Does she know what’s inside?
And what future resides
In her precious
and delicate treasure?
When a fish spawns it’s worth
And is gone before birth
Does she ache
for her never-seen fry?
Did she once look behind
Or are fish not designed
on past waters gone by?
Why don’t we just embrace
What is simply our fate
these gentle creatures resign?
When we know in our heart
That we play just one part
Of this world’s
most elaborate design
When the sun gently wakes
The new buds in the brake
And the fish
make their dance of succession
Birds will weave their nests
Where they feel it is best
life’s unspoken commission
To read more poems or add your own Click Here
This is proving a popular addition to the clubs
CERTIFIED COVID-19 FREE ZONE
Why not come on over and have a virtual coffee and slice of cake . Here's a place you don't need to keep your distance and can come and sit around one of our virtual tables for a chat
Click Here to enter
Psoriasis Club is self funded, we don't rely on sponsorship or donations. We offer a safe friendly forum and are proactive against spammers, trolls, and cyberbullying. Join us here!
No Corprate Sponsors.
No Requests for Donations.
No Scams or Cures.
No Recruitment Posts.
No promotions or offers.
Just a small bunch of friendly people with psoriasis sharing information and support.
Active Member Count
KatT with 968
Raxyl with I don't care how short we are of toilet paper, I'm not using seaweed.
First Of Last wooleyb with K
Turnedlight with C5
If you would like to take part in the next round or have a suggestion for a quiz See Here