Welcome to your June newsletter.
I hope you are keeping well and have avoided the terrible pandemic that has swept across the world, and although many governments are easing restrictions, the virus is still there. So we must stay vigilant. I know that being stuck inside for the last 10 weeks has been mind numbing for me, but I hope you have coped well yourself and managed to stay active, did you keep taking your psoriasis medication or did you stop. It would be interesting to hear how you are coping feel free to air you views here on our Covid-19 thread Covid-19 aka corona virus and psoriasis
Browse through the newsletter there are some interesting threads been started and introductions. Why not pop in while most of us are less busy and say hi. Or answer one of the members questions. Forums thrive on interaction and needs member input to stay relevant
If you have a thread about your experiences what better time to come in and update your thread or if you don't have one and would like to start a thread about your treatment you can do that Here .
The off topic has been as busy as ever as we now have a games and quiz board where many of the existing games have been moved to and a few new ones added why not pop in and have a look Games and Quizzes Here
If you're a guest feel free to browse through the links here and join if you want to see more. Some off topic items may not be available for guests but all the health boards are
The forum team have been busy keeping an eye on the Club and are there for you, so if you can't find something you are looking for or if you aren't sure how to do something, we are here to help just click the link below to make contact
I'm always looking for ideas to improve the newsletter if you have a suggestion contact me, or if you prefer contact any of the helpers HERE
If you are currently a subscriber to the newsletter you will receive notification with a link at the beginning of each month. If you don't currently recieve one and would like to receive an email when a new newsletter is made click HERE
Note: Subscribed members get an early view of the newsletter.
Kat_p writes about diagnosis of psoriasis after strep infection
Hi I'm new here, just got what turned out to be guttate after a bad strep infection in March. What started out as brown discoloration on my legs turned into tiny red dots all over my legs. I didn't pay much attention until it showed up on my chest. That's when i went to a dermatologist and got a biopsy. My doctor put me on betamethasone, however it doesn't seem to have lasting effect. I started out with tiny dots, now after 3 rounds of topical steroid, it spreads to other areas of my body. It does seem to reduce the inflammation and redness during my 2 weeks treatment, however as soon as i stop, the spots come back with a vengeance. Some spots even joined together and formed a 1inch leisons Click here to read more
To read more or to start or update your own ........... Click here
Fred has a question about Tremfya and eye sunlight sensitivity
Has anyone else using Tremfya noticed an increase in eye light sensitivity ?
It has been said that people with psoriasis can suffer with increased light sensitivity and I remember Stelara made my eyes more sensitive to sunlight.
I'm finding now we are getting a lot more brighter sunshine my eyes start to feel more sensitive and get very dry and I keep squinting, after coming back inside it starts to wear off and after a couple of hours my eyes are back to normal. read more here
mac092 has updated his Stelara thread
Now for the important update, just had my fourth dose of stelara. As before I am completely clear and the little blotchy patches on my skin(marks from where it used to be) have started to clear too. Speaking for my own experience so far, I've had absolutely no side effects. Long may this last!
The main reason I started this thread I suppose, was for anyone who failed with other treatments and we're beginning to lose hope, keep going there's more options. While skillarence failed for me, stellera has been a revelation and the needle really isn't a big deal(which is saying something as I used be terrified of needles). Ill try my best going forward to keep up to date, even if I only remember when I have to take another shot so that people can see how stelara plays out(for me) in the long term read more here
Duncan is experiencing problems with his eyes and is on Taltz
Started getting eye problems after a few weeks on Taltz.
Eyes aching like I was punched in them. It then changed to when I wore glasses to see the PC screen. (quite a lot) Its now very sunny in the Uk and I have slight head ache and eye ache. I had my last injection 18th April and was about to take it monthly. I missed my last injection, so now just over 5 weeks ago.
I am wanting it out of my system so I know if its Taltz that's causing it.
Opticians tested my eyes in January. They had another look when I started with problems. They couldn't find anything major. My eyes were very slightly dry and my distance vision had deteriorated a little.
I phoned dermatologist personal receptionist and asked if it was ok to stop temporary. Also with the Virus about. She said she had heard of someone else with the same problem.
My question is....How long before Taltz is out of my system more here
Humira V Fumaric Acid Esters (FAE) on cardiovascular disease in psoriasis
This study compared Humira (adalimumab) and Fumaric Acid Esters (FAE) on cardiovascular disease markers in psoriasis patients.
The effect of adalimumab and fumaric acid esters (FAE) on the cardiovascular risk associated with psoriasis has only been investigated scarcely in randomized controlled studies.
The aim of this prospective, randomized controlled head‐to‐head trial was to compare the influence of adalimumab and FAE on cardiovascular disease markers in psoriasis patients. Read more here
Cosentyx and Quality of life study
This study suggests Cosentyx (secukinumab) resulted in complete normalization of quality of life (QoL) in a substantial proportion of psoriasis patients, and their families, regardless of their prior treatment history.
Psoriatic disease is associated with considerable impairment of Quality of life (QoL). The PROSE study (NCT02752776) investigated the impact of secukinumab treatment on patient‐reported outcomes (PRO) in patients with moderate‐to‐severe psoriasis stratified by their treatment history.
PROSE was a prospective, non‐randomised, multicentre study. Patients were categorized at baseline according to treatment history as naïve (naïve to any systemic therapy [N=663]), conventional systemic (previously exposed to ≥1 conventional systemic (CS) therapy [N=673]), and biologics (previously exposed to ≥1 biologic therapy [N=324]). QoL PROs, efficacy and safety of secukinumab 300 mg were assessed for a period of 52 weeks. Read more here
Cosentyx V Stelara 52 week efficacy and safety study
Results of a 52 week efficacy and safety study of Cosentyx v Stelara
Secukinumab demonstrated superior efficacy over ustekinumab in the treatment of moderate to severe plaque psoriasis over 16 weeks in the CLARITY study and over 52 weeks in the CLEAR study.
To compare the efficacy and safety of secukinumab vs ustekinumab over 52 weeks in CLARITY.
Analysis of 52‐week data from CLARITY (NCT02826603), a phase 3b study in which patients were randomized to receive secukinumab 300 mg (n = 550) or ustekinumab 45/90 mg (n = 552) per label.
Click here to see results
Usefulness and reliability of insurance databases in psoriasis studies
Why not click on the link to see the study ... Read more here
Only 1/4 patients achieved complete skin clearance after 6 months on biologics
To read more about the study ...Click here
Cimzia encouraging results in psoriasis and psoriatic arthritis patients
This study set out to confirm the effectiveness and safety of Cimzia (certolizumab) in patients with psoriasis and psoriatic arthritis in routine clinical practice.
Certolizumab, a pegylated tumour necrosis factor‐α inhibitor, reduced disease activity in randomised trials of patients with psoriasis and psoriatic arthritis. Real‐life data are missing.
To confirm the effectiveness and safety of certolizumab in patients with psoriasis and psoriatic arthritis in routine clinical practice.
In this retrospective study involving 11 Italian sites, patients with psoriasis and psoriatic arthritis received subcutaneous certolizumab (400 mg loading dose at 0, 2 and 4 weeks, followed by 200 mg every 2 weeks) for up to 52 weeks. Primary outcomes included mean change from baseline in Psoriasis Area and Severity Index (PASI) and modified Nail Psoriasis Severity Index (mNAPSI) scores, and the proportion of patients achieving a 75%, 90% or 100% reduction in PASI score. Other endpoints included Disease Activity Score computed on 44 joints correlated to the erythrocyte sedimentation rate during the first hour (DAS44‐ESR), Tender Joint Count (TJC), Swollen Joint Count (SJC), pain (visual analogue scale [VAS] score), inflammatory markers and quality of life (QOL). Read more here
A lot of members only threads and journals have been updated, come and see if there are more replies on your thread ... why not log-in and have a quick look around.
*There are other members only boards. But as it depends on how many posts you have made and what group you are in I won't add them here. The only way to see them is to make more posts.
Each month we choose one of our members at random to answer 10 questions, this month it was Artemie
Q1: Do you have any pets ?
A1: Mr Artemie and me are building a smallholding and living in a mobile home untill the house is habitable. As soon as that is the case; two cats! Slutty friendly types.
Q2: What would be your last meal ?
A2: Something with: crispy salted chicken skin, cilantro/koriander and work it out from there.
Q3: Any sports interests ?
A3: Sometimes watch long distance speed skating and snooker. Under a blanket on the couch, so I can fall asleep at leisure. So good.
Q4: What did you have for breakfast today ?
A4: Coconut yoghurt with mashed strawberries
Q5: Do you collect anything ?
A5: Elastic bands. They are the best! Can be used for just about anything. The ones that go around asparagus vegetables are especially awesome.
Q6: Had an unusual or daring experience ?
A6: 12 Beaufort at sea. Twice.
Q7: Strangest Job you have ever had ?
A7: I got to decide who lived and died at…. No just kidding. I was a professional sailing captain for 8 years on historical tallships.
Q8: What is your favourite saying ?
Q9: Where do you see yourself in 20 years time ?
A9: On our homestead/smallholding, which is nice. Now it’s devoid of full grown perennials; just a windy muddy grassfield (former agricultural land), so looking forward to that.
Q10: Describe your living accommodation
A10: It’s a muddy mobile home and I love it =]
If you would like to be next please send me a PM
The end: This is going to be my last column in the Psoriasis Club newsletter. I have been doing a music column for around two and half years now, but I no longer have the enthusiasm to keep it going.
I have enjoyed trying different things and even ran a survey to try and get a feel of what you wanted, but I hardly ever get any feedback and as I once said in one of my columns (July 18) I feel like I'm just talking to myself. I'm running out of stuff to write about, I'm still a huge fan of music and could probably bore you all to tears but I feel it's time for me to call it a day and put my efforts into other places I use for music.
This also means that I will no longer be running the monthly members music recommendations. But all is not lost, you may have noticed KatT recently took over the music quiz, well she has also decided to take over the recommendations too. I wish her well with it and look forward to taking part from the other side.
It was fun whilst it lasted and I hope I haven't disappointed many people and thank you for reading. I will still be throwing the odd bit of stuff in my thread on the forum which you can find Here but it's time for me to turn off the amp on the newsletter and do something else with my music.
Keep listening to music, it can touch you in a way you will always remember later on in life. Also go out of your way sometimes and try something different away from mainstream.
Music Quiz: Score 1 point for each correct answer. *You get a bonus point if you find out what these artists have in common!!!
Who is the artist or band behind the following hit songs? (multiple choice)
#1: Stay #A Lipps Inc
#2: Hey! Baby #B: Billy Swan
#3: Green Tambourine #C: Sir Mix-a-Lot
#4: I Can Help #D: Maurice Williams and the Zodiacs
#5: Kung Fu Fighting #E: Bruce Channel
#6: Play That Funky Music #F: Dexy`s Midnight Runners
#7: Knock On Wood #G: Lemon Pipers
#8: Funkytown #H: Carl Douglas
#9: Come On Eileen #I: Amii Stewart
#10: Baby Got Back #J: Wild Cherry
If you would like to leave some feedback you can post in the Newsletter thread Here
Oh my goodness is that the time? Where has this month gone?
Time for a very quick and immensely tasty Tea/Dinner/Supper or whatever you call it in your time zone. Gnocchi and Chorizo
Yep a bit of a culture clash, but oh boy is this tasty! This is how fusion food should taste.
Start off by getting a large pan of salted water boiling ready for the gnocchi.
Fry off around 100g of finely diced chorizo over a medium high heat in an ovenproof frying pan. While the chorizo is frying off halve 125g of cherry tomato. After the chorizo has been frying for around 5 minutes add the tomatoes and cook for a further 5 minutes. Wilt in to this mix 125g of baby leaf spinach. It will just take a minute or two. Then add a couple of fat cloves of garlic and a half a teaspoon of chilli flakes. If you are not a fan of heat then reduce the chilli flakes a tad but I wouldn’t omit completely. Cook for a further minute and season to taste.
Cook the gnocchi according to the package timings so it coincides with the rest of the dish. Drain and stir into the rest of the dish in the frying pan.
Set you grill to high. Tear up a nice ball of mozzarella cheese and scatter over the gnocchi chorizo mix in the frying pan, stick the whole lot under the grill and wait drooling for around 10 minutes while the cheese melts into a bubbly gooey .
. . . . . . . Oh I cant wait Feed Me NOW!!!
Serve with a little baby greens salad (for colour obviously) and enjoy.
Accompany with? Well I would prefer a chilled Peroni Rossa but these can be hard to come by so I guess a bog standard Peroni would suffice. As there is a reasonable burn from the chilli I’m sort of stuck for the wine so I’m going to go slightly weird and suggest a chilled Zinfandel Rose, it might just work.
Sorry guys there is non left!!
To read more recipes or add your own Click here
Im always pleased when members submit photos for use in the newsletter and each month our members can choose 1 image to show on the newsletter and I'm always pleased to add them This months theme is Water
* All images are property of the member mentioned below the image.
See more members photos Here
Please remember no posts and no log-in for 12 months, your account will be deleted. For more information about this policy See Here!
First off I should point out that none of us at Psoriasis Club are medical professionals and you should follow the advice from your own healthcare system, we are just people like you living with psoriasis.
I have spent a lot of time looking for information as it's starting to worry some of our members, and as far I can see there is no reason for anyone taking a treatment for their psoriasis to stop.
Yes we have a recognised immune problem and this can be made worse with some treatments, but as far as I can find the recommendation is to continue with our current treatments.
I will continue to monitor the Covid-19 and Psoriasis news and update this thread if I have anything official to tell you.As restrictions are being slowly lifted it's still imperative to keep following social distancing advice and being scrupulously clean
You can read more here HERE
Clothing: Always wear 100% cotton clothes; ie, t-shirts, trousers, underwear etc. Avoid polyester, nylon etc because they will irritate your skin.
Under arm deodorant: Make sure that your deodorant contains no alcohol.
Moisturiser: Use raw virgin coconut oil it has natural healing properties in it too.
Instant relief: Keep a bottle of your favourite moisturiser in the fridge. The cooling really helps with the irritation.
You’re not alone: People all around have it too they might just be good at hiding it.
Anti histamine: Use a supermarket own brand non-drowsey anti histamine to help with the itching. (Always read the instructions before taking)
Frozen peas: For a quick relief from the dreaded itch try a bag of frozen peas, hold it on the itchy zone for a couple of minutes..
To see the full list of top tips Or if you have one to share Click Here
Turnedlights poetry corner
This month we look back through the poems and have 2 short ones
Today I saw a lazy frog
It really was a loafer
Perhaps he’d like to come inside
And try it on the sofa
The birds queued up to have a drink
Peering through the fronds
The pigeon crooned,
The blackbird swooned,
And fell into the pond
To read more poems or add your own Click Here
The person who says it cannot be done,
should not interrupt the person who is doing it..
To see more thoughts of the day Click Here
This is proving a popular addition to the clubs off topic section
CERTIFIED COVID-19 FREE ZONE
Why not come on over and have a virtual coffee and slice of cake . Here's a place you don't need to keep your distance and can come and sit around one of our virtual tables for a chat
Click Here to enter
Here are a few random quotes from members of Psoriasis Club, they are taken from posts that are visible to the public and are all unsolicited.
"I feel better for being able to talk to people on here who are going through the same thing. - Sophiedophie"
"Thank goodness for people like you and forums like this - Imapsomom"
"I really appreciate having this forum - Hawklight"
"I just wanted to say how grateful I am for the support you guys have all given me over the past few days - MarcusScone"
"I am so happy to find a support group where everyone truly cares. - SadieMae1"
"Y'all are so awesome with all the feedback. I don't feel so alone anymore. - SnarkyTexan"
"Glad to be here, this seems like a great group - Coffeeplease"
"Thanks to all the persons of this great forum - sunnyman"
"Thanks for the warm welcome - KatT"
"So glad I found this forum - GirlFromTexas"
For more random quotes Click Here
Psoriasis Club is self funded, we don't rely on sponsorship or donations. We offer a safe friendly forum and are proactive against spammers, trolls, and cyberbullying. Join us here!
No Corprate Sponsors.
No Requests for Donations.
No Scams or Cures.
No Recruitment Posts.
No promotions or offers.
Just a small bunch of friendly people with psoriasis sharing information and support.
First Of Last
KatT with C
Active Member Count
KatT with 973
Raxyl with G2
Raxyl with This new CCTV system in the Bar is great, now we can see who is drinking all the merlot
If you would like to take part in the next round or have a suggestion for a quiz See Here