Psoriasis Club Newsletter

September 2020

Welcome to your September newsletter.

Hi, I hope you enjoy your September newsletter, September to me is when the school children go back to school and the Summer winds down towards Autumn, but this year has been so different around the world as Covid-19 has changed all our lives in some ways as we try to survive the pandemic. As always I hope your psoriasis is keeping under control if not come in and have a chat about it. There is a lot of knowledge of the disease on the forum and sometimes sharing your experiences with others can help with coping

If you fancy a non psoriasis chat we have lots of threads in the off topic section including the chatting thread where you can write about anything and someone will soon reply. You can access it Here.

The off topic has been as busy as ever and games and quiz board is proving very popular . Why not pop in and have a bit of fun. Games and Quizzes Here.

If you're a guest feel free to browse through the links here and join if you want to see more. Some off topic items may not be available for guests but all the health boards are.
The forum team have been busy keeping an eye on the Club and are there for you, so if you can't find something you are looking for or if you aren't sure how to do something, we are here to help just click the link below to make contact HERE.

If you are currently a subscriber to the newsletter you will receive notification with a link at the beginning of each month. If you don't currently recieve one and would like to receive an email when a new newsletter is made click HERE.

Note: Subscribed members get an early view of the newsletter.

This months stats

New Introductions and updates

shaidaw wrote

Hi,
I've visited here several times, but never posted. It helps tremendously to have a forum like this not only for information but for emotional support as well - knowing others are experiencing the same problem and not giving up. I have flare ups on the soles of my feet and occasionally on my hands. The disease started 15 years ago, and it was after I took a course of antibiotics for an infection on my foot. I haven't tried any of the biologics. Click here to read more

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Chloe Mary wrote

Hi guys
I am so glad i found this group!

Only yesterday I had bloods done to see if i can start Skilarence! I hope I can! I have had Psoriasis since 2016 ( got it after strep throat) , not nearly as terrible as some people but it is certinaly enough to effect my emotional status & outfit choice!!!

Some days I wake up & think Feck it Ill wear the short dress, but other days I just cant do it!! I have tried to change my diet, I have tried every topical treatment under the sun & I have had Light therapy ( worked well the first time, just not the second!!)

I am due to be married next July & I really hope I can have this under control by then! I am scared about the potential side effects of the drug but if I dont try Ill never know! Click here to read more

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To read more or to start a thread about your treatment or update your own ........... Click here

Psoriasis News and other related items

Following on from this notice Cosentyx gets positive opinion from (CHMP) for use with Psoriasis in Children

read more here

Novataris have now announced

Quote:
Novartis have announced the European Commission (EC) has granted the approval for Cosentyx (secukinumab) for the treatment of moderate-to-severe plaque psoriasis in children and adolescents aged 6 to 18 years.

The recommended dose for children up to 50 kg is 75 mg (without a lower weight restriction), and 150 mg for children 50 kg and over (150 mg as a starting dose, which may be increased to 300 mg, if needed).
See here

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Members treatments, questions and comments

Following on from Chloe Mary's intro above

Guys!
I was approved!! (for Skilarence) woohoo.. It has been sent to my chemist so wil have it in a few days and its covered by my health insurance ( always a win)

I have a question though! Should i be taking supplements or anything at the same time? Maybe someone taking it can tell me!!

More here

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Emiliano's writes of his journey with cosentyx

Hola everyone,
My name is Emiliano. Just started Cosentyx 5 days ago.

I Got Psoriasis in 2012 after a car crash (was told it usually triggers after a traumatic event). Tried everything:
Lotions, foams, creams, diets, Methotrexate, UVB, psychoanalysis, "magic new age" therapies. The curve never stopped going up. More and more by the day.

About 2 month ago, got approvement from my health plan. Before starting, a few general checking (Cholesterol, heart rate, glucemia, etc...), and a reinforcement on vaccines (influenza, Hepatitis, tetanus).

I'm 37 years old, in a decent shape. Run about 20k a week. Got my Quarentine/winter belly (It's cold and dry down here in Patagonia), no more than that. Read more here

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Want more?

Music with KatT

Welcome to music with KatT: Where you can test your knowledge on music and see other member's music recommendation!

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Music Quiz: Score 1 point for each correct answer.

Can you name the backing bands who performed with these artists? (multiple choice)

Artist: Band:

#1: Martha Reeves and the #A: News

#2: Gladys Knight and the #B: Sunshine Band

#3: Huey Lewis and the #C: Banshees

#4: KC and the #D: Heartbreakers

#5: Siouxsie and the #E: Vandellas

#6: Katrina and the #F: Bad Seeds

#7: Tom Petty and the #G: Miami Sound Machine

#8: Gloria Estefan and the #H: Range

#9: Nick Cave and the #I: Pips

#10: Bruce Hornsby and the #J: Waves

Answers
1 goes with E
2 goes with I
3 goes with A
4 goes with B
5 goes with C
6 goes with J
7 goes with D
8 goes with G
9 goes with F
10 goes with H


Show Answers

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Members recommendations: Each month I ask our members to come up with a music recommendation on a theme. This month it's Justice.
Raxyl suggested: I Fought the Law by Dead Kennedys
D Foster suggested: Jailhouse Rock by Elvis
jiml suggested: Miss Otis Regrets by Kirsty MacColl
Kat suggested: The Night the Lights Went Out in Georgia by Reba McIntyre
Grizzly Bear suggested: I Fought the Law by The Crickets
Caroline suggested: The Letters by King Crimson
wooleyb suggested: Holloway Jail by The Kinks
Fred suggested: Tough Justice by Blues Saraceno
Mrs Fred suggested: Mighty Sword of Justice by Tom Robinson
JohnB suggested: The Streets of San Francisco by Barclay James Harvest
KatT suggested: The Judge by Twenty One Pilots

Listen on: Deezer | Spotify

Show Recommendations

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If you would like to leave some feedback you can post in the Newsletter thread Here

Johnb's Recipe Spot

This Month Macaroni and Prawn Bake

I just fancy a bit of pasta. Anyone want to join me?
I thought for a change I would try something a little different, how does this sound?
This should feed four.

As it takes the longest I suggest you make a batch of Béchamel Sauce first so. . . .

Gently melt around 2 tablespoons of butter in a sauce pan and mix in a shy ¼ cup of flour. Keep it moving over a medium heat to cook the flour out a bit then start to add around 300ml (½ pint) of milk, using a whisk to stop it from lumping up. Once its all nicely mixed, throw in;
2 tablespoons of finely chopped shallots,
Half dozen peppercorns,
2 parsley sprigs
A couple of bay leaves
Some dried thyme and season with some salt to taste.

Simmer it for around 15 minutes and keep stirring. Once done strain through a coarse sieve, you want the peppercorns and bay leaves out. The onions can stop in they wont affect the dish.

Did you know Béchamel Sauce can stick to a non stick pan?
I do now!

Right down to the main bit -
In a pan of heavily salted water cook off around 350g (3 cups) of macaroni until barely cooked, still quite firm to the bite. Drain and toss in a couple of tablespoons of butter to stop the macaroni from congealing together into a gooey mass. If your timing is off cover and keep warm. Try to keep a cup of the water back to use to slacken the sauce off a bit when you mix it all together.

While the pasta is cooking finely slice a couple of bulbs of Fennel and fry off in a little olive oil for 3 or 4 minutes. Then add about 175g (6oz) of sliced mushrooms and fry off for a few more minutes. Stir in 175g (6oz) of cooked prawns (ready to eat or frozen are fine), sprinkle with a healthy pinch of Cayenne Pepper then toss all the fried stuff into the pasta. Add the Béchamel Sauce and give it a good mix. Use a bit of the retained pasta water if needed.

Turn it all out into a greased ovenproof dish, grate over a load of Parmesan or Pecorino Romano. Then half a couple of tomatoes and slice them and arrange around the edge of the dish. Brush the tomatoes with a little olive oil and sprinkle some dried oregano over the tomatoes.
Bung it into a hot oven at 180C/350F/Gas mark 4 for 25 minutes until nice and golden brown and bubbling hot.

Serve straight away.

To go with this I think a nice lightly chilled Gavi would work quite nicely.

Now who wants to wash up and chisel the stuck on Béchamel Sauce off my best sauce pan?

To read more recipes or add your own Click here

Members Photos

I'm always pleased when members submit photos for use in the newsletter and each month our members can choose 1 image to show on the newsletter and I'm always pleased to add them. This months theme is Weather

Information

Please remember no posts and no log-in for 12 months, your account will be deleted. For more information about this policy See Here!