October 2021

Hello everyone,

Pleased to say things have picked up a little on the forum last month. I do sometimes sit here and wonder why I keep it going, but when I see our members new and old posting it reminds me how valuable this place is to people. Also when I see a new member getting a warm welcome and support it makes it all worth doing as that new member could go on to help others in the future.

Had a bit of a psoriatic arthritis flare-up recently and it got me thinking how you never stop trying to work out what is going on. Could it be something I ate, what about stress, or the weather has changed etc. But over the years I have found it's better not to try and work out what is happening and enjoy life. Yes I know some of the diet junkie's amongst you will say "try this or stop that" but if it was that simple we wouldn't all be here talking about psoriasis would we. No I like my food and drink too much thank you. It's not stress or the weather, so sod it I'll put it down to writing this rubbish on here every month and blame you lot for reading it.

Lost the key to my office the other day, can you help me find it ? I'm sure I had it whilst putting this months newsletter together, it's got to be here somewhere. If you do spot it please let me know where it is as I'm offering a reward of one months free drinks in the Psoriasis Club Bar for it's safe return.

Ok let's get on with the show.

Fred.

New threads on the psoriasis boards

Intro from Forest Walker

Through this forum, I am learning that topical steriods are not good long term . . . or maybe not good at all. I hope to learn more. Did the use of ..........
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Intro from KC2021

Hoping to find insight on Otezla side effects. I've been on it about 6-weeks and have worked through the usual nausea and headache but am experiencing ..........
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What happens to my psoriasis treatment syringe

The syringe goes in my yellow sharps bin when full I take my bin to the pharmacie and they give me a new one. But what happens to all those syringes ..........
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Creams, pills, and biologics. OH MY

It's been a couple years since I've posted anything in the forum. I've had so much going on, it's been crazy. I'd been thinking about this forum a lot in the ..........
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Question about Humira

I feel more stifness, more fatigue, my knees start to hurt, my lower back pain is coming back on the 12th day. On the 14th day i will ..........
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I healed my plaque psoriasis with the plant Artemisia Annua

I began with this disease 6 months ago, plaque psoriasis in all my body. 2 moths ago i began to take Artemisia Annua pills, is a plant, now i'm ..........
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FDA ads new safety warnings to some JAK inhibitors

FDA (U.S. Food and Drug Administration) requires warnings about increased risk of serious heart-related events, cancer, blood clots, and death for ..........
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Cosentyx gets NICE approval for use in children with psoriasis

Cosentyx (ecukinumab) is recommended as an option for treating plaque psoriasis in children and young people aged 6 to 17 years, only if ..........
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NICE recommends Xeljanz for juvenile psoriatic arthritis

The treatment is available for young people whose arthritis has not responded well enough to disease-modifying antirheumatic drugs (DMARDs) and only if ..........
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Investigating the association of structural variations in psoriasis

We performed a genome-wide screen on SVs using an imputation method on 5 independent cohorts with 45,386 subjects from the Chinese ..........
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Ilumya / Ilumetri efficacy and safety in psoriatic arthritis

This study looked at the efficacy and safety of the anti-interleukin-23p19 monoclonal antibody Ilumya Ilumetri (tildrakizumab) in patients with ..........
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FDA updates warnings for three JAK inhibitors

The FDA is requiring revisions to the Boxed Warning for Xeljanz/Xeljanz XR (tofacitinib), Olumiant (baricitinib) and Rinvoq (upadacitinib) to include ..........
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Soligenix to Advance Synthetic Hypericin Development in Psoriasis

Synthetic hypericin, the active ingredient in HyBryte (hypericin ointment 0.25%), is a potent photosensitizer that is topically applied to skin lesions and ..........
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Evelo Announces Positive Phase 2 Clinical Data with EDP1815 in Psoriasis

This is the first Phase 2 study to demonstrate that we can harness the small intestinal axis to make a clinical impact on patients with an oral ..........
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Bimzelx for psoriasis two year data

UCB have published two year data evaluating the long-term safety, tolerability and efficacy of Bimzelx (bimekizumab) through to ..........
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Music with KatT

Welcome to music with KatT: Where you can test your knowledge on music and see other member's music recommendation!

Music Quiz: Score 1 point for each correct answer.

Determine the instrument. With multiple choice

Question: Answer:

#1: What instrument is Ringo Starr holding on the album cover of Sergeant Peppers Lonely Hearts Club Band? #A: Guitar

#2: This large wind instrument is used for cultural music by the indigenous people of Australia #B: Trumpet

#3: This musical instrument originated in Indian classical music but was soon brought throughout the Western world through bands like The Beatles. #C: Saxophone

#4: This musical instrument evolved from the sackbut, an early brass instrument #D: Bagpipes

#5: Typically used for jazz music, this instrument will rarely find its way onto the symphonic stage #E: Piano

#6: As the oldest musical instrument in existence, this instrument requires far more bodily coordination than others #F: Trombone

#7: Associated with bluegrass, folk and country music, this instrument is typically fitted with four or five strings #G: Drums

#8: What is a Fender Stratocaster #H: Banjo

#9: What was the first product of the Yamaha corporation back in 1887 #I: Sitar

#10: This instrument's unique appearance makes it easy to distinguish because of it's air reservoir, melody pipe and drone #J: Didgeridoo

Kat suggested: You've Got a Friend by James Taylor
Raxyl suggested: Night Boat to Cairo by Madness
Caroline suggested: Seasons by Grace Slick
Wooley suggested: Summer Breeze by Seals & Croft
D Foster suggested: The Four Seasons by Vivaldi
Fred suggested: Winter by The Rolling Stones
Mrs. Fred suggested: Long Hot Summer by The Style Council
JohnB suggested: And Winter Came by Enya
KatT suggested: Winter and My Soul by Grand Funk Railroad

Listen on: Deezer | Spotify

If you would like to leave some feedback you can post in the Newsletter thread Here

Johnb's Recipe Spot

Balsamic Chicken

If I was to utter the phrase “I feel like Chicken tonight”, there may be a few people (definitely in the UK) that will be cringing with the memory of ‘that’ advert on television in the early 90’s. It was there to promote a jar of sludge (cooking sauce) that was supposed to convert a bland hunk of chicken into a gourmet meal. Yeah right! Tried one once – never again. Well I do feel like Chicken Tonight, but this is ohhhhhh so nice and it will help with reducing Fred's tomatoes for him so he wont have to resort to making so much passata for the freezer.

To kick off, take a chicken breast per person and over a medium high heat fry them off in a little oil until nicely coloured, it takes around 5 to 6 minutes a side or so, just making sure they are cooked through. I don’t want anyone off ill with Salmonella.

At this point remove the breast and stick them somewhere warm. Throw a finely diced onion into the pan, reduce the heat to medium and cook the onions for around 5 minutes. Now add 4 tablespoons of Balsamic Vinegar, this will de-glaze the pan. Carry on cooking until it starts to thicken. Now add around 600g of halved cherry tomatoes, a couple of teaspoons of dried rosemary and 175ml of chicken stock. Turn the heat down to a simmer, cooking for another 8 to 10 minutes.

When the time is up return the chicken breasts to the mix, giving it a good stir to coat the chicken in the tasty sauce and cook for a further couple of minutes. Rip up a small handful of basil to sprinkle over before serving.

To serve, We serve it up over some noodles, we use the pre-cooked noodles gently warmed but you could always cook some noodles up, they normally take less than 5 minutes or even use spaghetti.

To accompany, Personally I would be looking at something Italian like a lightly chilled Gave or a Pinot Grigio.

I hope you enjoy.

To read more recipes or add your own Click here

Talking gin with D Foster

More musings on Gin:I have not drunk much gin this month because of all the extra driving I have had to do, the Japanese gin that my neighbor was getting in has also not materialised.

I do however have a new gin called Caorunn which I am looking forward to trying as it’s a bit unusual with bog myrtle, dandelion, rowan berry ,heather and coul blush apple (red apple). It should be very interesting. A Dutch physician who went by the name of Franciscus Sylvius is thought to be the ‘inventor’ of gin having started prescribing a juniper-based distilled spirit for medicinal purposes in 1550. The English first got their hands on the spirit while fighting Spain in Holland during the Thirty Years’ War, where they drank it to calm their nerves before going into battle. Yes, that’s right. Gin is the original ‘Dutch Courage’. And, when the soldiers returned home, they took their newly found favourite spirit with them, of course, and they never looked back.

After the Worshipful Company of Distillers was formed by King Charles I in 1638, which gave members a monopoly on the distilling trade within 21 miles of London and Westminster, it was clear that London would play a special role in the history of gin. However, we owe the real tradition of London Gin, as well as Britiains’ attachment to it, to yet another Dutchman. And that’s the Dutch king William III – better known as William of Orange – who took to the throne in England and Ireland on 22 January 1689 and introduced the traditionally Dutch drink to his subjects. The era became known as the Glorious Revolution, and it was during this time that London became the epicentre of gin’s popularity.

By the early 18th century, London was home to thousands of ‘dram shops’ and around 10 million gallons of gin were being distilled in the capital. As a result, it wasn’t long before the gin and London love affair turned into an obsession and gave rise to a host of popular gin cocktails, such as the classic G&T, which was first drunk by British soldiers on the Indian subcontinent as a means of avoiding illness due to the high levels of antimalarial quinine contained in the tonic water.

I do hope that I have given you a little insight into the origins of the splendid liquid refreshment though hopefully next time I will have tasted the Caorunn and with a bit of luck the Japanese one as well. Mrs Dave is getting a taste for the G&T as well so the general consumption I would imagine will increase when Clare gets back home from hospital though when that will be I don’t know.

David

If you would like to leave some feedback you can post in the Newsletter thread Here

Caroline's adventures

I was walking in the tiny village of Woudrichem . This is a village a so called Vestingstad, you can see that on the shape of it. The problem was that, l had to pee and no restaurant or whatever in sight.

It was still very early in the morning, at breakfast l had coffee, Lots of, and juice. Therefore the kidneys had done their best as always happens when you drink a lot of orange juice in the morning. So I was looking around for possibilities even bushes would have done but they were nowhere around.
Then I saw an elderly man at the fishing museum opening the door. I stepped towards him and asked him if the museum had toilets and if I then was allowed to use them. Luckily he said ‘yes’ but it would gonna cost me a whole 50 cents, he said.

Well that was doable for me of course so I went in to the very excellent toilets.Coming out I started a little chat, because of his friendliness, and asked him if the museum was open. And indeed it was, and he asked me if I would like to see it, only the entrance fee was 2 euro’s, but I would get my 50cents back, because the toilets were free for visitors of the museum.

He apparently liked a good conversation as he kept on talking while we climbed the stairs to the museum that was on the upper floor. Over there he said, take a seat, I will make coffee. While making coffee he kept on talking about the museum. That they had a rough time because of the pandemic and that they were behind in the rent (so my 2 euros will certainly help. They were hoping for more government support.

We had a nice coffee together with the guy, he told me he was 78. Which surprised me as I had given him at most 65, he looked very fit. After the coffee we got a tour from him through the museum , where he told us everything about how the fishing was done in the river, which organisations were involved (time has not changed also in that time power was misused), about special fishing rights, about the nets, that were made by the women and prepared to last longer. He hated the effect of the current nylon nets on nature. He showed old photographs and told about the people on them and the ones he personally knew. There were many photos from the war, that was bit strange.

Anyway, we had a good time listening to his stories and were moving again to the entrance, when we heard some rumour. Another even older guy stepped in with a little box in his hand, which appeared to be a whipped cream cake. We were immediately invited for a new cup of coffee, now with cake.
But we thought is was enough, the planned pee-visit of 5 minutes has already changed to 1,5 hour, so we apologised and left. It was fun and it is amazing how friendly people can be of you are talking to them, asking questions and be interested.

Memos

See you all next month

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